After a visit with a couple of great doctors in Children's Hospital Network, we are finally rolling on. I've got a lot of new homework to do, and am in the middle of it. I will update this page in full as soon as I can. Until then...here's a bit of the stuff we're looking in to.
  • language processing
  • sensory integration
  • neuropsychological evaluation
  • PT/OT evaluation
  • sleep disorder
  • genetic tests for CM-AVM
  • maybe some imaging to get down to the real question.....what is Ben's brain doing now???

We've always known that he's a special (and brilliant may I add) guy. There are some things that are suspect though. So this list is not to try and diagnose anything...it's more of a list to rule out these things. Wish us luck! And I'll journal this page real soon to tell you about the newest advocate we've found for our little man.

Wish us luck!!!

And just in case you haven't heard? The AVF? What AVF? The last of the feeders gave up. It's done!!!! Thanks Dr. Berenstein and Dr. Niimi!!! Thanks to the rest of the team as well! From the bottom of our hearts!

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